Nagaraju keeps his hemophilia under control with a little help
Nagaraju was born with hemophilia with factor VIII deficiency. He lives with his mother in Hyderabad. His father passed away when he was very young. This led to his mom being the sole earning member of the family.
His mother is uneducated. She works as a tailor. She has a very unstable income. They manage to make ends meet with great difficulty.
Hemophilia A, also called factor VIII deficiency, is a genetic disorder caused by missing or defective factor VIII, a clotting protein. People with hemophilia A bleed longer than other people. Bleeding can occur internally, into joints and muscles, or externally, from minor cuts, dental procedures or trauma.
Currently, there is no cure for hemophilia. The main method of treatment for hemophilia A is to intravenously infuse a concentrated FVIII product called clotting factor or simply factor through a vein in the arm or a port in the chest.
Living with a disease that has no cure, Nagaraju always has to be ready for life threatening situations. On one instance he got affected with a peritoneal bleed - an internal bleeding. He was admitted in the Little Star's Children Hospital.
A large quantity of factor VIII was required to control his bleeding immediately. The cost of this requirement crossed over a lakh. His mother had no means of arranging this amount. She was helpless and was at a complete loss of options.
Seeing their situation the hospital referred them to Hemophilia Federation.
Hemophilia Federation with the support of The Hans Foundation provided 5012 IUs of factor VIII which covers close to Rs.60000/- as partial support. Nagaraju was treated by infusing the required units. His internal bleeding was controlled and he recovered well.
He is now registered with the Hyderabad chapter of the Hemophilia society.
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