Pritam has hope of a normal life despite having hemophilia
Pritam Mazumder was born with hemophilia with factor IX deficiency. He lives with his family in a small village in West Bengal. His father is a farmer. He is the sole earning member of the family. They have an extremely unstable income. They manage to make ends meet with great difficulty.
Hemophilia B, also called factor IX (FIX) deficiency is a genetic disorder caused by missing or defective factor IX, a clotting protein. People with hemophilia B bleed longer than other people. Bleeding can occur internally, into joints and muscles, or externally, from minor cuts, dental procedures or trauma.
Currently, there is no cure for hemophilia. The main treatment for hemophilia B is to intravenously infuse concentrated FIX product, called clotting factor through a vein in the arm or a port in the chest.
Living with a disease that has no cure, Pritam always has to be ready for life threatening situations. On one instance he started suffering from severe pain in his lower back. He was unable to move from his bed. Upon consulting the doctor, he was advised to immediately have factor IX infusion.
A large quantity of factor IX was required immediately. The cost of the required units of factor IX crossed over a lakh. His father had no means of arranging this amount. He was helpless and was at a complete loss of options.
Seeing their situation the doctor referred them to Hemophilia Federation.
Hemophilia Federation supported him with 4800 IUs of factor IX. This covers close to Rs.1,00,000/- of his treatment costs. Pritam was treated by infusing the required units. His condition was brought under control and he recovered well.
He is now registered with at the Kolkata chapter chapter of the hemophilia society.
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