Bi's wish to see her daughter comes true!
Bi grew up in a large family with a lot of siblings. Her family raised and sold goats for a living. Even though they were not well off, she was very loved in her family. She always wanted a large family of her own when she grew up.
Unfortunately, she couldn't bear children. This news devastated her and she fell into depression. To help her overcome depression, her siblings let her raise their children. Her husband earned a meager income but was happy to support her in raising the children. Over time, the children got married and her husband passed away. The marriage of the children and the death of her husband hit Bi with loneliness.
Bi, then started raising and selling goats for earning her livelihood. However, one goat changed Bi's life. She instantly connected with her. Bi named her Sita. Sita showed a lot of human emotions and they both grew very fond of each other.
One day Bi noticed a lump on her breast. Further tests confirmed that she was in an advanced stage of breast cancer. Afraid of the cost and suspicious of hospitals, Bi denied treatment.
It was then that a relative referred her to Karunashraya. She visited Karunashraya and agreed to get admitted as she felt cared for by the staff. In no time Bi became one of the favorite patients of the doctors, counselors and nursing staff.
While they cared well for her, Bi was always concerned about Sita. Her niece had informed her that Sita was unwell and depressed. Bi insisted on going home to visit the goat who had now become her daughter. But Bi's condition had deteriorated and she couldn't be sent home.
And so began the long journey of bringing Sita to the hospital to fulfil Bi's last wish.
The staff at Karunashraya made all efforts to bring Sita to the place. Sita, unfamiliar with the sound and feel of vehicles and would keep trying jump out of the vehicles. After three days of failed attempts, the staff managed to bring Sita to the hospital on a two-wheeler!
Karunashraya had seen many reunions and wishes being fulfilled but a wish in the form of a goat was new. All the staff followed Sita to Bi's ward and the whole place was lit with smiles and tears of joy.
Sita was surprisingly disciplined. She walked along one side of the corridor and seemed calm and composed. On meeting Bi, she turned her face away and refused to look up at her. It was as if she was annoyed with Bi for staying away from her for over 6 months. She relented only when an overwhelmed Bi picked her up and placed her on her lap. A happy Sita peacefully dozed off on her lap.
The goat slept in Bi's lap like it had finally reached home after a long journey. Bi spent the whole day with her relatives and Sita and looked like she couldn't have asked for more.
A few days later, Bi bid goodbye to the world knowing Sita was in good hands.
** A little support and care can help terminally ill patients them live their last days in peace. Your donations can help Karunashraya care for many more patients like Bi. You can give with confidence because every program on our platform is GIVEASSURED.**
By donating to this program
you will be sponsoring the overall costs incurred to support the beneficiaries
What the beneficiary gets
The 73 bed Inpatient facility of Karunashraya at Marathahalli, Bangalore, provides free professional palliative care for advanced stage cancer patients irrespective of caste, creed, religion, age and socio economic backgrounds. This care includes free food and bed, medical care and counseling support.
Over 70% of the patients are from lower socio economic backgrounds.
Donations to this program covers a part of doctors' salaries who attend to the patients, which is their largest expense.
One of the biggest aspects of palliative care is the control of pain and distressing symptoms. Each patient who is entrusted to their care therefore needs a special care option to be designed for them.
The doctors go on rounds everyday to monitor the patients' condition and design the best action plan for their medical treatment.
The hospice provides this care completely free of charge ensuring that the patient is in peace, pain-free, in comfort and with the best quality of life possible.
The holistic inpatient care team, which includes a nurse, a counselor and a doctor, visits homes of these patients to provide necessary care - ranging from wound dressing, restocking medicines, changing catheters. Ryles tube, as well as bathing and counseling patients and their families.
A follow up on the patients after the discharge through is also done through Karunashraya's Home Care team.
When you donate to this program you help poor terminally ill patients get access to medical care they deserve during their last days.
5 October, 2021
Help poor terminally ill patients get access to medical care
Activities and work undertaken in the last 5-6 months
Despite the limitations imposed by continuing covid-19 pandemic, Karunashraya has been working relentlessly for maintaining the quality of palliative care it delivers to terminally ill cancer patients. Our nursing and other staff members continue to exercise utmost precaution in ensuring that the dreaded virus does not find any host in Karunashraya. Social distancing and other norms, as defined by the government agencies, are being strictly observed by all the employees of Karunashraya. The current second rise in new Covid-19 cases has enhanced our alertness and preparation for combating the disease.Training and Education:Karunashraya had a one-day sensitization program in palliative care for the Government-managed Primary Health Centre nurses and pharmacists. The program attracted 67 participants.We had conducted a one-day training for the new staff of Karunashraya in relation to sexual harassment. Ms. Shobhana R. Thakrar, a consultant for the POSH Act and a social worker/our external committee member, trained our 31-nursing staff.Awareness Programs:Members of the club Platinum city, in association with Karunashraya, conducted a cancer awareness program and hair donation drive on World Cancer Day. The campaign was launched at Showoff beauty salon, Domlur, Bangalore. A Volunteering group, comprising software engineers and named Robinhood, visited Karunashraya on January 25, 2021, and planted a few saplings as a token of their commitment to the cause and to spread awareness about palliative care. Celebrations:Karunashraya celebrated the new year on the 1st of January 2021, and the function was sponsored by Axa Technologies. On the occasion, games were organized and patient’s wards were decorated, and Karunashraya employees were treated with sumptuous lunch and hi-tea. As always, the Republic Day was celebrated with fervour and enthusiasm keeping in mind restrictions imposed by Covid-19. The nineth anniversary of our charity shop was also celebrated and we fondly remembered Ms. Leela Sridhar was who conceived the idea of a charity shop and its future role in generating financial resources for Karunashraya.Clinical Posting:As a part of NFPC clinical posting, Ms. Pooja Saikia, a nursing staff at Jorhat Medical College, Assam, joined Karunashraya on March 18, 2021. While at Karunashraya she would undergo intense training till March 27, 2021 and would then return back to her parent institution. The training in palliative care at Karunashraya would eventually help the patients in the north-eastern part of the country. Participation in Conferences and Seminars:Medical staff of Karunashraya attended the IAPC conference, held in online mode, coordinated by AIIMS Patna during March 19-21. Six poster presentations were made by the team Karunashraya and 16 individuals participated in the conference. Ms. Sangeetha, Nursing Tutor, Karunashraya, gave a talk on “Skin care and pressure injury management” in a sensitization program for doctors, which had over 50 participants. Ms. Sangeetha also gave a talk on “Compassion in palliative care” in the National Webinar on World Cancer DayLife-Time Achievement Award :It is a matter of great honor for the entire Karunashraya that our chairman Mr. Kishore Rao received the Life-Time Achievement Award from Vcare.Other Events :Four members of Lions Club of Bangalore (Kanaka Nagar) visited Karunashraya on 27 January to get an insight into activities of Karunashraya in relation to rendering of palliative care, and also education, training and research in this area. Young enthusiastic volunteers, currently students of the standard 11th, from an apartment made videos for the entertainment of our patients and staff. Memorial Day Celebrations:Owing to the raging Covid-19 pandemic, Karunashraya had a brief function on May 1, 2021 to mark the day the first patient entered into Karunashrya for admission. On the occasion, a special lunch was organized for all the employees of Karunashraya.
Challenges faced and next steps
We escaped the first wave of the pandemic comparatively unscathed. But alas that was not the situation in the second wave. By the middle of March, since all the staff was vaccinated, we stopped the quarantine process and only asked for the RTPCR for those who were travelling. The screening protocols were slightly relaxed for our staff. The caregivers were asked to maintain all safety protocols, but once inside the hospice we were unable to monitor them continuously. We were sure we had shored up all our defences against the covid infection especially after the vaccination, but we were wrong. The second wave affected us badly. Several of our staff got infected, mainly through caregivers of the patients. Many of our staff lost their loved ones to Covid. Some are still suffering the aftereffects of the infection. Few of our patients also got infected and had to be shifted to tertiary covid hospitals so that they could get appropriate treatment. We had to shut down our operations completely for some time to ensure the safety of the remaining patients. Though we were affected badly, that did not stop us from providing care and support to our patients and their families. The homecare operations were halted, but the medicines and consumables that our patients at home required were provided to them at the hospice. Teleconsultation and video conferencing became the new norm. All the employees of Karunashraya have compulsorily undergone through both the doses of Covid vaccine. This was necessary to safeguard patients.
Stories from the ground
LIVING WITH DIGNITYAs a physiotherapist, I’ve met many extraordinarily determined people – people whose bodies have given up on them but whose spirits refuse to. They have made me understand the astonishing endurance of human will and what it can achieve when challenged. This former high school teacher was no different. When I first met her, she was eating with her left hand, not because she was born left-handed but because the weakness in her right hand made it impossible for her to use it. “She’d rather feed herself with her left hand than be fed,” I thought, impressed by her spirit and dignity. She displayed these qualities in abundance over our subsequent meetings. She had undergone surgeries which had left her partially impaired and with debilitating weakness. But just like I sensed the fighter in her, she sensed that I was not about to give up on her. A strong, unspoken bond began to form between us. I discussed her case with her doctor and outlined my plan of action. I took her into confidence and told her the work that was involved in getting her back on her feet. She was game. She was determined to be active. Most importantly, she trusted me and had confidence in my abilities. As therapists, we rely greatly on patient confidence. The same day that I started her on therapy, she stood up with support. This was a milestone both for her and for me. Though she didn’t take her first steps that day, it was a small moment of victory we savoured together. It’s not that she does not have fears – she faces her fears with effort and determination. When we began her gait training, she dragged her right leg painfully at first but with a few more sessions, she got noticeably better. The task is uphill but I know if I was climbing, I would want her for a climbing partner – someone who doesn’t give up, who rejects defeat and is not afraid of being afraid and yet soldiering on. It’s not for nothing she’s a teacher – she’s teaching me every day.MATHEW JINU SAJIPhysiotherapist
23 March, 2021
Abode of Compassion
Covid-19 has touched us all in some form or the other. At this time of crisis, Karunashraya has put in place all protocols which would help us serve our patients better and at the same time would not compromise the safety of our patients, caregivers and staff.
June 2020 brought in the first phase of unlock, and with that one of our home care staff got infected which resulted in the closure of home care, since we could not put the life of our patients and staff at risk. With more things being unlocked, there has been a sustained increase in the number of Covid cases in Bangalore. To combat this, we enforced stricter screening protocols; this time screening was in multiple places, at the main gate and the reception. A Covid test became mandatory for all patients and also caregivers who come from containment areas. The staff were also asked to do a regular screening. Later In spite of the fact that Covid-19 epidemic is on a decline, Karunashraya continues to strictly follow the well-established protocols so as to safeguard the interests of its patients and employees. The employees leaving station or visiting crowded areas observe five-day self-quarantine followed by RT-PCR test for Covid-19. The inpatients showing breathlessness and other covid-related symptoms are transferred to the isolation ward and our special medical teams take all care of them. Despite our home care teams having become fully functional, they still avoid visiting red zones having widespread covid infections.
It is a matter of great satisfaction that well-wishers, including donors, continue to support Karunashraya. A big thank you to all of them for helping us in these difficult times.
5 August, 2020
HOSPICE CARE during Covid 19
HOSPICE CARE during Covid 19
The donations we received have helped us to reach out to more patients through our various centres including Homecare link centres & Inpatient centres. Awareness about Karunashraya's services has been spreading and now a steady stream of patients are seeking admission. This also helped Karunashraya to provide food and medicine to the increasing number of patients. We are still running the same program, which is providing free palliative care for advanced-stage cancer patients. However, we have taken the current situation with at most seriousness and reworked on our patient care protocol.
So, we are giving you a glimpse of Karunashraya in the light of COVID 19 infection -
India and the whole world are currently under the grip of a terrible pandemic which has taken more than 50000 lives and affected almost a million people worldwide. As such a lot of restrictions have been imposed to curb the spread of this Pandemic in our country. We at Karunashraya respect these restrictions and also consider it our duty to take the best care of our patients whilst also making sure that they are safe from the COVID 19 infection.
Karunashraya hospice has kept its doors open for our patients, but with certain restrictions. Since all our patients are in an immune-compromised state and also have other co-morbidities along with cancer they are more susceptible to the covid infection, and this may also prove fatal for them. So in order to protect them we have imposed certain limitations on our routine admission procedure. Currently we are taking only those patients who are having a medical emergency like severe pain, vomiting, bleeding, abdominal distention, seizures, breathlessness etc. We have requested all patients, caregivers, and staff with respiratory flu like symptoms to get checked out in a fever clinic/hospital and to self quarantine for 14 days. A strict screening process has been initiated at the entry for caregivers and visitors. Entry of visitors has been constrained to one per patient with limited time for visitation. Letters have been issued to all caregivers who have to come from far and may face restrictions from police.
We have temporarily suspended our home care visits keeping in mind the safety of both our patients and our staff, and also due to the travel restrictions placed by the government. We will restart our home care once it is safe and the restrictions are lifted. In the meanwhile patients are followed up by phone and can come in for OPD consultations/admissions in case of an emergency. We are still dispensing medicines from the hospice directly, for our patients especially those on Morphine/Fentanyl or Buprenorphine and dressing materials for our patients who cannot afford to buy them. They have been requested to send an attender to come and collect as per requirement.
19 November, 2019
Patients receiving the care and support
Patients receiving the care and support
22 July, 2019
We are able to provide holistic care with the help of a team of well trained and competent doctor, counsellors, physiotherapist and nursing staff. Our doctors will visit each patient daily along with support nurses and counsellor and review their charts and symptoms for medication and appropriate adjustment of medication. Our Nurses and nursing aides will take care of their physical hygiene and provide feeding support as required. Total In-Patents From Jan to March is 339. Total Home care patients is 307. NUMBER OF HOURS WORKED BY EMPLOYEES FROM JAN’19 TO MAR’19 : DOCTORS CARE- 2844 Hrs, NURSING CARE- 43720 Hrs, COUNSELLING - 3748 Hrs, ADMIN Staffs- 27700 Hrs.
Story from the field
Name: Ayesha Parvin
Age: 38 years
Ayesha had two children- a daughter and a son, both MBAs. She was a painter and a vivacious person. However, ever since being diagnosed with pancreatic cancer, she was quite down. She had a love marriage and had converted to Islam in order to do so. Luckily her family did not abandon her because of this. When she came to Karunashraya, she was shocked and disturbed to see scars and wounds of other patients. Since she had pancreatic cancer, she was not familiar with such outwardly physical wounds. Her initial treatment used to involve chemotherapy but she would never see other patients and would leave the hospital without interacting with them. At Karunashraya, this was different. She would attend Diversion activities in the Activity Room and be very conscious of other people’s wounds. She would be very introverted and would not like to participate in art and craft activities – would make excuses saying her hand was paining etc. She told Sundari that she did not know that cancer could manifest in this outwardly physical way and that she did not like coming to the activity room because of it. Despite this, Ayesha would always have suggestions about the art activities and would always give artistic suggestions. One day, Sundari gave her a coloring book with materials and told her to work on it at home, since she did
not like the Activity room. Ayesha was most pleased and took this up very seriously. She worked excitedly all night and came to the Activity room the next day with a beautiful sketch copied from a book of rhymes. This is now pasted on the wall of the Activity room. In fact, a generous donor has decided to fund the framing of her artwork. She had not disclosed until then that she was a painter! It came about one day organically while Sundari was chatting informally with Ayesha’s son – who works on face detection – and was pleasantly surprised by this information. The Activity room brought out Ayesha’s passion and zest for life. She began to uplift other patient’s spirits by bringing them out of the ward and making them walk and chat and enjoy life. She had accepted the cancer
she had and wanted to live a life that was comfortable and happy. The ward was always cheerful when she was around. She liked the view from the ward because she could see the fountains and also watch her husband going and coming.
Ayesha’s wish was to not die a painful death. She wanted to have minimum pain towards the end and a degree of dignity for her life. And this was fulfilled because she passed away in her sleep very peacefully one morning. Her family had come to visit her the previous evening and when they heard the news, they were very happy that she did not have pain towards the end. Her family is still in touch with Karunashraya. Her daughter remembered her mother in a touching post on social media, in which she wrote about her mother’s zest for life. This is what Ayesha wanted. She wanted for people to remember her that way not as a patient in pain. She had managed to bring up to happy, independent, and successful children.
|What is the expected total number of beneficiaries in this program for FY18-19?||1500|
|What is the number of beneficiaries/ benefits provided in this program, Year-To-Date||6000|
|Village/City/State where project is located||Bangalore / Karnataka|
|Total Budget for the project for FY18-19||66389032|
|Total Expenses for the project YTD||58340835|