Sponsor 600 units of Factor IX for a patient with Hemophilia to prevent death or infection-Hemophilia Federation (India)
Sponsor 600 units of Factor IX for a patient with Hemophilia to prevent death or infection, INR 13200
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Overview

Started in 1983, Haemophilia Federation India (HFI) is the only national umbrella organization in India working for the welfare of the Persons with Haemophilia (PwH) through a network of several chapters spread over four regions. Their aim is to reach out to PwH and provide total quality care, education, make treatment available at affordable cost, psycho-social support, and economic rehabilitation and thus help them in improving the quality of life without disability and free of pain.

The Basics

Several people and children suffering from haemophilia belong to Below Poverty Line (BPL) families. Due to the lifelong, incurable nature and very expensive management of the disorder Anti Hemophilic Factor (AHF), it becomes difficult for families to meet expenses of the same. Most men from such families are factory-workers, daily wage earners, rickshaw pullers, vegetable vendors, or they are engaged as household help in neighbouring apartments.

How It Works

• The requirement for AHF can be even more in case of severe bleeding and surgeries.
• Besides, this is not a one-time expenditure as a person may injure himself/herself a couple of times in a month.
• Most haemophilics are thus not able to get timely, sufficient and appropriate treatment, which eventually has consequences such as disability, death, HIV/AIDS, Hepatitis B/C infections, and even stress due to financial constraints.
• Haemophilia Foundation maintains a list of the most deserving patients.
• This is based on the severity of the condition as well as family income. AHF is then allocated to beneficiaries as and when required.
• A second installment is given only after receiving satisfactory proof that the first installment of AHF was properly utilized.
• In case of death of a current beneficiary or underutilized medicine by another patient, a new beneficary is identified.

Statistics

• 3-4 times – Number of times in a month that a person with haemophilia may injure himself/herself
• 90% - Percentage of people and children suffering from haemophilia who belong to BPL families
• 500-1000 – Minimum number of units of AHF required by a haemophilic patient
• Rs. 10,000 – Cost of minimum number of units of AHF required by a haemophilic patient
• 12,500 – Number of people and children suffering from haemophilia who belong to BPL families

Donation Option Break-up cost in INR
Cost of 600 Anti Hemophilic factor IX Rs 20 per unit 12000.00
Admin / Handling charges 10% 1200.00
Unit Price 13200
Quantity
Total 13200
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Treatment Support
Mr.Pritam Mazumder is a patient of hemophilia with factor IX deficiency. He is a resident of a small village from North Bengal and is a registered member of Kolkata chapter. He was suffering from severe pain in his lower back in the month of August and he was unable to move from his bed. According to the local doctor he required factor IX infusion. His Physical condition was not very well. His father is a farmer .His father could not arrange for the required factor due to financial constraint
In this situation HFI with the help of The Hans Foundation provided 4800 IUs of factor IX which was infused to him during the treatment.
This well-timed support helped him in his recovery and his pain was comforted.

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